Terms of Use Agreement
Last updated: July 13, 2026
1. Acceptance of Terms
By accessing and using the website SPG11 Journey Tracker (the "Service"), you agree to comply with and be bound by the following Terms of Use. If you do not agree to these terms, you are prohibited from utilizing or accessing this platform.
⚠️ 2. NO MEDICAL ADVICE DISCLAIMER
The entire clinical, phenotypic, genetic, and timeline content offered on this website is for educational and advocacy-support purposes only.
This website is not a medical diagnostic engine, clinical application, or treatment device. The content does not constitute professional medical advice, clinical diagnoses, or clinical opinions. Always seek the advice of your neurologist, geneticist, pediatrician, or other certified healthcare provider regarding any questions about a rare disease. Never disregard professional medical consultation or delay seeking care because of material located on this Service.
3. Intellectual Property Rights
All original text, structural layouts, diagrams, custom SVGs, and interactive logic on the SPG11 Journey Tracker are the intellectual property of our portal's contributors. You may access, print, and download our resources exclusively for non-commercial personal reference or academic advocacy. Redistribution, copying, or commercializing this educational content without prior written permission is strictly prohibited.
4. External Links & Third-Party Sites
Our Service compiles direct hyperlinks to global rare-disease databases, medical publications, and non-profit foundations. These links are offered as an educational convenience. We do not exercise editorial control over, verify, or assume any liability for the privacy policies, accuracy, or content of third-party platforms. Accessing linked sites is done entirely at your own discretion.
5. Absolute Limitation of Liability
To the maximum extent permitted by applicable laws, the volunteer authors, researchers, and creators of the SPG11 Journey Tracker shall not be held liable for any indirect, incidental, punitive, or consequential damages (including, but not limited to, medical decisions, physical therapy modifications, or emotional distress) arising out of or in connection with your use or inability to use the information served on this portal.
6. Updates to Terms
We reserve the right to modify these terms at any time without prior notification. By continuing to use our platform following the publication of revised terms, you signify your acceptance of the updated Terms of Use.